Update

I hope everyone is having a wonderful Labor Day!

I was on a path of writing regularly than SLAM! I started a few but threw them in draft. My thoughts are all scattered. Let me just tell you recent events.

I got my disability check BUT not last month's. So I am in the system once again. I am still contemplating if I want to get a lawyer to see what I can do or just chalk it up to the government and leave it alone. I don't give up easily but what the lawyer would charge would probably take what my check is worth plus more. 

Last week My BabyGirl and I had a sleepover. We had our weekly outing. Since  MyLove was out of town and she seemed to be alone I asked her if she wanted to come spend the night. So she packed up and we came here. We watched two movies, talked and I put her to bed around 10:30. It was hard to do but I told her to take the phone off. We woke up and I brought her to college.

After her morning classes, I picked her up and brought her to the apartment so she can get her bike and ride back to college for her evening class. I enjoyed my time thoroughly and didn't want to let her go.

A while back I was searching YouTube for a country singer my daughter had mentioned. However, the suggestions on the side grabbed my attention. If any of you have not seen Annoying Orange you gotta see this. OOps I tried putting it below but it kept going where it is now.

There are various videos featuring Annoying Orange. The laugh is wicked. It is cool the way the creators have the mouth move to the script. I cringe every time the knife comes even though I know it is going to happen. I now have to have my "Orange" fix every day.

I also have joined a couple of groups on Facebook. One only accepts people with cerebral palsy. It is astonishing to see so many people with the same difficulties and although our lives are different, we have some similarities. It is nice to be able to know somone ACTUALLY knows how certain situations make you feel.

I also joined a "Remember When you Lived On" ...:.and it states the little island I grew up on.  It is remarkable how many people lived there before we did and after. We remind each other the little things we had forgotten. We remember the people that have touched our lives. We remember our adventures we had: Going to the sandpit, swimming in the bayou, stopping for the alligators to cross and much much more. Everyone remembered chasing the train man and he throwing candy to all of us. We remember our field trips, the little school we went to etc.

Most of all we realize  how special that island was to grow up on. We never thought we would be reminisicing living there. It was a true beautiful place to live.

 I used to wish there was a place like it to raise my daughter. But there will never be a place like it.

CP Group

Yesterday, somehow I happened on a group on Facebook. It was probably my spastic hand doing its own thing at the moment.  (HAHA)

This group is specifically for people with CP.  Members share their life story. They ask questions. Some are just hanging out.

It is amazing to read other's stories. It is cool to be able to say, "OH I so can relate!" or "Yep, that happened to me". We all have our differences but it is nice to join a group that actually understands or has been through what you have been through.. It shows WE ARE NOT ALONE.

There are young people with CP struggling to be accepted for who they are, not by what they have. They have concerns what they can or can't do. There are older people who have been through the same the young ones are going through that can support them and encourage them.

It is amazing how soceity has accepted the 'disabled"; compared to when I was growing up.

It is amazing to learn how the braces and therapy changed and improved.

I have had some ask me how it was when I was in high school, how my CP affected me going to nursing school, how it affected me being a parent and many more. It is great to be able to share your experiences with someone and able to encourage them, "You can do this."

Thank you Leigh Lockrey for putting up such an awesome page!

Someone asked me privately how did my child feel growing up with a mom with a disability. My daughter and I have discussed it candidly. It was my worse fear that she would be ridiculed because of me. She stood up for me. She doesn't remember the one time that made me realize she could hold her own. .

Anyway I asked her to write a paper stating her real feelings about being raised with a mom with a disability to share with others. Stay tuned for her letter next post.