Friday, March 27, 2015

CEREBRAL PALSY AWARENESS MONTH: FAMOUS PEOPLE WITH CP

Cerebral Palsy Awareness Month is coming to an end. 

I want to thank all of those who wore Green on March 25th, Cerebral Palsy Awareness Day. I received a few emails stating that their coworkers wore Green that day after reading my Facebook Challenge. Ya'll are AWESOME!!!!!

Today, I am going to tell you about some people with Cerebral Palsy. I am absolutely sure there are many more . If anyone comes to mind, please do share.

Josh Blue is my favorite comedian with Cerebral Palsy. His act centers around his disability. Most of us with CP can so relate to him and laugh about it.

Abbey Nicole Curran  was the first MISS USA PAGEANT contestant with a disability, representing IOWA. You go girl!

Bonner Paddock who wasn't diagnosed until he was 11 years-old played sports, In 2008, he was the first person with CP to reach the summit of Mt Kilimanjaro. He is the founder and chairman of the OM Foundation that raises money to build early learning centers providing various types of therapy to children with disabilities.

Dan Keplinger is an artist known as King Gimp. His art is awesome.

Geri Jewel is a comedian, actress author and motivational speaker. You may have seen her on Facts of Life where she became the first person with CP to be on a prime time TV show. 

Christy Brown is the author of  his autobiography of My Left Foot that was turned into a movie. He has a severe form of CP. He was nearly paralyzed and couldn't speak until he moved his left foot. His mother than taught him to speak, read and write. His story is truly inspirational.

RJ Mitte: An actor on Breaking Bad. He serves a spokesman of actors with disabilities for the Screen Actors Guild. He is also an Ambassador for United Cerebral Palsy. 

Jerry Taylor is the only person to jog across America with crutches. He is a motivational speaker and participated in running over 30 marathons and climbed the top of over 14,110 foot Pike's Peak.

See folks, there are so many others with CP who have conquered so many challenges. They have extraordinary lives. This is a list of only a few but the ones who make me smile when I hear their names.  


Friday, March 20, 2015

CP AWARENESS MONTH: AWESOME T-SHIRTS

I found some T-shirts on Zazzle.com. I was surprised MyHubby is wearing his. But shame on me because I know he supports me. And my shirt pretty much sums it up for me.

Cerebral Palsy Messed With The Wrong Chick


I wear Green for my wife and Cerebral Palsy Awareness


I think they are so cool!!

Monday, March 16, 2015

Payton's Update

Payton. my little cousin who I keep talking about is giving a good fight against Monster C.

Around three weeks ago, he went for his round of chemo. However, his ANC levels were too low so chemo had to be set back an entire week.

According to MedicineNet ANC is described as this "The real number of white blood cells (WBCs) that are neutrophils. The absolute neutrophil count is commonly called the ANC. Neutrophils are key components in the system of defense against infection. An absence or scarcity of neutrophils makes a person vulnerable for infection.

As they were waiting, an accident happened. Somehow a night stand fell on his hand and broke 3 fingers. He had to have surgery.




A few days later, the little dude had to endure a 5 day course of chemo through his chest line and the chemo injection in his eye. This made him very sick and his ANC level dropped to 0. This caused him to be in the hospital for two days because of fevers and the chance of infection.

Friday he was able to go home but first had to receive platelets.

This dude is so tough. But I often think of ALL the children who his going through this and much more.

They are home now and he is happy playing with his brother and sister. They have to go to Baton Rouge tomorrow for lab work to make sure his labs are good.

March 30 they have to return to St. Jude's to undergo 1 day of chemotherapy which lasts 5 hours.

To make things worse their truck broke down so this family keeps having bricks thrown at them. They are strong and they will endure but with help of all of you, whether it be money or prayers, they will come through.

This weekend is the Jambalaya cook off and Gumbo cook off. There is also going to be pool tournament, raffle and other fun activities. Of course if you can't make it, his gofundme is still opened.




I this is so adorable!



Saturday, March 14, 2015

MyLove's Birthday!

Today is my Hubby's birthday!

I wonder what my life would be like if I had not made that phone call. I wonder where I would be if he was not born. 

We both had lives before "us". He was married and divorced. I was married and divorced twice. I had a child. He sees my child as his own. 

It was fate that he and I met because all of his life he traveled all around the world.  He lived in several places whereas I lived in one area for most of my life.

He makes me laugh. I love how he make sound effects and makes those crazy faces.

He is supportive. He has seen me at my very worst and was there to pick me up from falling.

He understands my CP and has taken my limitations in stride and I know it was sometimes HARD. He'll say it wasn't but it had to have been at times. Darn! Sometimes it is hard myself!

He is compassionate and caring. He HATES to see me hurting or sick. He knows when to just hold me and when to leave me alone.

He puts up with my pure silliness and that, my friends, is a lot to put up with!

He and I just fit.  I am Blessed. 

He doesn't read my blog so I'll have to send this one to him. But Happy Birthday MyLove!

May we share many more!





Wednesday, March 11, 2015

CP AWARENESS: PSYCHOLOGY REPORT II

Here's the second Psychology Report a year later from yesterday's post.

Again I'll translate:

Age: 6 years 6 months

Seen: New Iberia Health Unit
          Iberia Parish Unit
         5-12-69


I saw Lisa in April of 68 at which time she attained a Stanford-Binet I.Q. of 71. Another test was wanted to see if she had changed significantly and what class she should be placed in, whether she should attempt the regular class or be in a retarded class.

Lisa impresses me as rather formal and matter of fact without great feeling. She talks rather vaguely and her articulation problems make it quite difficult to understand her.  She is still a fairly scared child.


On the WISC Lisa attained a verbal IQ of 72 and a Performance I.Q. of 65. These scores are in the Borderline and Mildly Retarded ranges. The highest score seems to be the more accurate measure of her academic or school ability.

There are signs from testing and otherwise that the mother tends to keep expecting too much and pushing this girl some. Again I told her that she couldn't help Lisa's ability by doing this but could harm it some. I encouraged her to let Lisa do as much as she could, however.

Actually, this girl needs a slow learner class but that's not available. I think it's probably better to let this girl belong to the regular class and spend a year or two in each grade, rather than being in class where they are much lower and much rowdier.  Also regular classes are near her home and family would not have to drive an hour a day to make arrangements. I cautioned the mother that Lisa probably would fail every year or so and to emphasize on grades significantly. I think it would be good if Mrs Hebert reinforced this from time to time.

______
I passed every year as an average student. I went onto becoming a nurse. So much for being a slow learner.

With many years of speech therapy during my Elementary years my speech has improved significantly although I have trouble with saying a word. I call those times as having a CP brain fart.

 Once you get to know me, you usually get used to my speech. However, strangers have trouble sometimes. MyHubby tells me most of the time they are not listening exactly to what I am saying.

Case in point: The other day I was on the phone. I was saying my address and our street name is difficult for people to spell: Courtableau…signs like Core-tah-blah. I spelled it. She comes back with C-o-r-t-o-b-l-u. How did she miss u, got "o" out of a and totally missed ea is beyond me because I was saying it fairly slow. So I had to repeat using words "C as in Cat", etc.

My mom is my hero. She could tell I could do a lot more than the Psychologist implied. I sometimes wonder what would have happened if there was a slow learner class available. I think my Mom would have fought tooth and nail.

The  tone of the psychologist and the way he used mentally retarded makes me cringe.

It's funny! I think I express myself with very strong feelings just fine. I think many will agree.

I think as a child I was shy and I knew I was "different". Being evaluated by doctors and psychologists was intimidating to a little tot. Kids sense many things and maybe I sensed something with this psychologist so I clammed up.

I also wondered how the test was performed because how could he give me a score when he could not understand what I am saying?

Of course with my bad speech problems at the time, very few people took the time to try to listen and understand me. So I probably thought why bother to talk.

I have friends and family members say they forget I have Cerebral Palsy in any way, shape or form.
I love to hear that.

Thank you for the warm comments and encouraging words.